So yes, all these things of still moving forward with her heart, yet we got a 9% improvement makes me want to scream. WE IMPROVED. But the long and short of it, is its not a numbers game. Her heart despite the small improvement is failing.
We also increased her medications yet again. Which in short means cue headaches, dizziness, vomiting, and sleepy girl. I was finally started thinking we were getting back to somewhere near normal again with her, what ever that is. We will still keep her out of school til after Christmas break, and go from there. I could totally use a few hours of her in school right now….Can anyone say Santa has a 6 year old tagging along!